FAAN + FAI = FARE

Leading Food Allergy Organizations Announce Completion of Merger and Introduce New Name


Merger Between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative Finalized
FAIRFAX, VA and NEW YORK (Nov. 12, 2012) – The Food Allergy & Anaphylaxis Network (FAAN) and the Food Allergy Initiative (FAI) today announced the completion of their merger, marking a tremendous milestone for the food allergy community. The new organization, known as FARE, will be dedicated to food allergy research and education with the mission of ensuring the safety and inclusion of individuals with food allergies while relentlessly seeking a cure.
FARE combines FAAN’s expertise as the most trusted source of information, programs and resources related to food allergies with FAI’s leadership as the world’s largest private source of funding for food allergy research. The organizations first announced their intent to merge in May and recently received the final regulatory approvals.

Building on the significant accomplishments of FAAN and FAI over the past two decades, FARE will fund world-class research that advances treatment and understanding, provide evidence-based education and resources, undertake advocacy at all levels of government, and work to increase awareness of food allergies as a serious public health issue.

“FARE is committed to serving all those affected by food allergies through research, education, advocacy and awareness,” said John Lehr, CEO of FARE. “Food allergies are a serious and growing public health issue touching every aspect of our society, and it is critical for all of us – whether food-allergic or not – to know how to properly manage this potentially life-threatening condition.”
The merger comes at a crucial time in the national discourse around food allergies. This potentially life-threatening medical condition, which has no cure, affects as many as 15 million people in the U.S., including one in every 13 children – or roughly two in every classroom. With nearly 40 percent of these children already having experienced a severe or life-threatening food-allergic reaction, the need for a cure – and for increased education about the impact of this condition – is urgent.
Through the end of 2012, FAAN and FAI events, public communications and websites will continue with the existing organizations’ names. FARE will debut its new logo and website, which will be located at www.foodallergy.org, in early 2013.

The new organization will be headquartered in the Washington, D.C. metropolitan area. In addition to existing offices in New York and Chicago, FARE will have five regional offices covering the Northeast, Midwest, Southeast, Southwest and West to help expand fundraising and outreach activities.

About FARE

Founded in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE is a nonprofit organization dedicated to food allergy research and education with the mission of ensuring the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. Food allergies are potentially life-threatening and affect as many as 15 million people in the United States, including 5.9 million children. FARE funds world-class research that advances treatment and understanding of food allergies, provides evidence-based education and resources, undertakes advocacy at all levels of government, and increases awareness of food allergies as a serious public health issue. For more information, please visit www.foodallergy.org.

Media Contact

Nancy Gregory
Media Relations
(703) 563-3066
E-mail: ngregory@foodallergy.org

Event - Spirit of Advocacy

9th Annual Children’s Hospital of Richmond
Spirit of Advocacy

Wednesday, October 3, 2012
6:30 – 8 p.m.
Brook Road Campus Auditorium
Children’s Hospital of Richmond at VCU
2924 Brook Road, Richmond, VA
Doors open at 6.

Don’t Go Nuts:
Be Your Child’s Advocate Against Food Allergies
This special program is FREE and will provide information on ways to keep children with food allergies safe at school and in the community. The program will explore food allergy risks, awareness and partnership opportunities with educational and community resources.

2012 Spirit of Advocacy Award winners will be announced in the categories of family, community and faculty/staff.

Please register by September 29, 2012.
Call 804-228-5836 or e-mail jtlear@chva.org.

FAAN Walk for Food Allergy in Northern Virginia

Saturday, September 22, 2012

Occoquan Regional Park
9751 Ox Road
Lorton, VA 22079
Check in: 10:00 a.m. Walk: 11:00 am
Distance: 2 miles

Join us! Our team page: http://www.foodallergywalk.org/site/TR/2012Walks/2012Walks?team_id=70761&pg=team&fr_id=2182

March Support Group Meeting

All meetings are free and open to the community; preregistration is not required. Parents are invited to attend support group meetings without children, to allow for candid adult conversation (with the exception of infants in car seats or carriers).

March Support Group Meeting Announced
Date: Wednesday, March 28, 2012
Location: Twin Hickory Library Conference Room (8)
Time: 6:30 PM - 8:30 PM
Contact: Sara Kamencik, kamencik5@gmail.com

For a complete list of upcoming Support Group Meetings, visit:
http://www.richmondfoodallergy.org/p/support-group-meeting-schedule_07.html

School Epinephrine Update

HB1107 has passed the House floor vote in a 95:1 vote and it has passed the Senate floor vote Unanimously!

These are the bills requiring schools to maintain stock epinephrine:

http://lis.virginia.gov/cgi-bin/legp604.exe?ses=121&typ=bil&val=hb1107&Submit2=Go

Advocacy Now - Instructions and Advice

Here's a link to information about the School Access to Emergency Epinephrine Act:
https://www.foodallergy.org/page/school-access-to-emergency-epinephrine-act1

There are instructions on the page for emailing/sending a letter to representatives to show support. (See Below for a list of Email Addresses)

Here's Virginia's Senate version of the bill (SB656):
http://lis.virginia.gov/cgi-bin/legp604.exe?121+sum+SB656

The House of Representatives has a similiar version (HB1156):
http://lis.virginia.gov/cgi-bin/legp604.exe?ses=121&typ=bil&val=HB1156

Our Virginia patrons of the bill on the education committee:
DelTRust@house.virginia.gov
DelJMassie@house.virginia.gov
DelTGreason@house.virginia.gov
DelCStolle@house.virginia.gov
Delrrobinson@house.virginia.gov
DelOWare@house.virginia.gov
DelJMcClellan@house.virginia.gov

Other members of the education committee:
DelDBell@house.virginia.gov
DelJLeMunyon@house.virginia.gov
DelBPogge@house.virginia.gov
DelMCole@house.virginia.gov
DelSLingamfelter@house.virginia.gov
DelSLandes@house.virginia.gov
DelBTata@house.virginia.gov
DelJYost@house.virginia.gov
DelDYancey@house.virginia.gov
DelMDudenhefer@house.virginia.gov
DelKAlexander@house.virginia.gov
DelRTyler@house.virginia.gov
DelDBulova@house.virginia.gov
DelJMorrissey@house.virginia.gov
DelMKeam@house.virginia.gov


Here's a sample letter/email to show support:

From: amypaner@...
To: DelMKeam@...
Subject: HB 1156
Date: Sun, 22 Jan 2012 08:28:10 -0500

Dear Delegate,

I am writing on behalf of the Richmond Food Allergy Support Group ("RFASG") in Richmond, Virginia to ask you to pass HB 1156, the School Access to Emergency Epinephrine Act. The RFASG is composed of parents of children with food allergies, whose lives have forever been changed by the receipt of their child's diagnosis.

Our group works closely with local parents and physicians to help navigate life after the diagnosis of a food allergy. All aspects of life are affected when living with food allergies. From taking a family trip, flying in an airplane, going to a friend's house for a simple play date, and most importantly, going to school. Most parents are nervous sending their child off to school for the first time. As a parent of a child with life threatening allergies a whole new layer of worry exists when sending your child off out of your care.

The recent and upsetting food allergy-related death of a child in a Chesterfield County, Virginia school brings the issue of having a child with food allergies way too close to home. No other parent should have to mourn the food allergy related death of their child.

Children with food allergies are at risk for anaphylaxis, a systemic allergic reaction that can kill within minutes due to asphyxiation or extremely low blood pressure. To prevent death, anaphylaxis must be treated promptly with an injection of epinephrine. HB 1156 would ensure that epinephrine is available in schools and that school personnel are trained to administer it in an emergency. Epinephrine is safe and easy to administer. Children are able to self-administer the medication, and any adult working in a school would be capable of learning how to administer epinephrine in a matter of minutes.

Nearly 6,000,000 million American children have food allergies and many are at risk of anaphylaxis. Schools need to be prepared to treat allergic reactions in the event a student's personal epinephrine auto-injector is not available or the student is having a reaction for the first time. Like Automated External Defibrillators (AEDs), stock EpiPens can save lives. Stock EpiPens in schools can prevent the unnecessary death of a child from anaphylaxis.

The School Access to Emergency Epinephrine Act is not a controversial bill. It is endorsed by the Food Allergy and Anaphylaxis Network, the American Academy of Pediatrics, The American Academy of Allergy, Asthma, and Immunology (AAAI), and the National Association of School Nurses. On average it will cost a school just over $100 to have epinephrine available to prevent a fatality from anaphylaxis. This is a small price to pay to save the life of a child.

As a parent of a child with life threatening food allergies, and a support group leader, I urge you to pass HB 1156. Thank you for considering our views.

Sincerely,
Amy Paner
Co-Leader Richmond Food Allergy Support Group

RFASG Co-Leader Featured in Richmond Times Dispatch Article

Food allergies require vigilance
By: TAMMIE SMITH | Richmond Times-Dispatch
Published: January 15, 2012
http://www2.timesdispatch.com/news/2012/jan/15/tdmain01-food-allergies-require-vigilance-ar-1612550/


Related Information:
Parents, teachers, friends and family ~ It is important that you speak up right now to support the proposed bill to ensure the availability of epinephrine in schools for the treatment of anaphylaxis.

The best way you can help is to write a letter to your representative. It sounds difficult, but it's not. Speak from the heart, and use the following examples as your guide. Don't copy the letters word-for-word, but do explain why you agree with these measures.

This is a summary of the bill from FAAN:


Here's a Sample Letter to The Honorable Senator Stosch